List of Blog Articles
Follow Mama Shu
2018
Approaching the One Year Anniversary of My Child's Death
First Christmas Card Without You
2017
The Beautifully Possible: Ribbon Cutting Ceremony for Crescent Cove
Crescent Cove to Open: A Special resource for children and families
Co-authored article with Ted Bowman for the Minnesota Coalition for Death Education and Support
On the Cusp: further unraveling after my child's death
What remains when a child with medical complexities dies
Announcing Levi’s Life Celebration
Levi has Lifted off Into Heaven
Levi prepares for death
Life is Meant to be Enlivening
Palliative WHO? Meet the Sherpas who Help us Navigate the Diagnosis of Uncertainty
Guest blog posting for Pediatric Home Service
2016
A Mother’s Advent on Behalf of her Son
Remembering Levi’s Friend Isaac
Palliative WHAT? Understanding the Team that Keeps my Son out of the Hospital
Guest blog posting for Pediatric Home Service
Article published in the National Hospice and Palliative Care Organization's ChiPPS' e-journal
MNRI Family Therapy Conference Updates
Tribute to my Mother
5 Minutes that Changed my Life for the Better
Guest blog post for Pediatric Home Service
Allowing the Sabbath to Overtake Me
2015
Levi's 6th Birthday
Article and Video by Star Tribune
National Institute of Nursing Research
Featured in campaign: Palliative Care, Conversations Matter ®
Dr Gawande: A Breath of Fresh Air
Roundtable with Senator Al Franken
Speaking with Senator Al Franken on the importance of Palliative Care
What Palliative Care Means to Us
Published Article for National Institute of Nursing Research’s campaign Palliative Care, Conversations Matter ®
Testifying in the House and Senate in support of increased funding for Interveners who support children with deafblindness. In the final budget, the bill was passed to increase funding of $1million over two years.
A dramatized example of what we experience as a family with a child with a shortened life expectancy.
2014
Levi’s 5th birthday