National Institute of Nursing Research
We are so honored to have been selected to share Levi's story as a part of the National Institute of Nursing Research (NINR) campaign Palliative Care: Conversations Matter (R). They have just published a new resource for families that includes four family stories about the positive and life-giving impact of pediatric palliative care. We are honored that Levi's story is one of the four featured in this publication.
Here is where you can view the publication
https://www.ninr.nih.gov/sites/www.ninr.nih.gov/files/NINR_508c_FamilyStories.pdf
or read the text in full at
http://mamashu.wixsite.com/mamashu/single-post/2015/07/08/What-Palliative-Care-Means-to-Us
