The Beautifully Possible: Ribbon Cutting Ceremony for Crescent Cove
Last week I had the honor of speaking at Crescent Cove's Ribbon Cutting ceremony for the a residential respite and hospice home for...
Palliative WHAT? understanding the team that keeps my son out of the hospital
"While palliative can be a word heard frequently in the medical field, it’s one that is often misunderstood and unnecessarily concerning...
A Letter to My Son's Care Team
Summer 2016 We have nearly completed our 7th summer of annual clinic visits, where we check in with Levi's long list of specialty...
Allowing the Sabbath to Overtake Me
Saturday was our first day of 50 degree (F) temperatures here in Minnesota since the start of the new year. The one where the snow has...
The Surprises of 2015
At the end of 2014, I was invited to speak at the Minnesota Network of Hospice and Palliative Care's (MNHPC) Fundraiser. The invitation...
Nowhere to die
Today the Star Tribune, an award willing regional newspaper, featured a story on Crescent Cove and our son Levi on the cover of the...
National Institute of Nursing Research
We are so honored to have been selected to share Levi's story as a part of the National Institute of Nursing Research (NINR) campaign...
Dr Gawande: A Breath of Fresh Air
Tonight the Minnesota Network of Hospice and Palliative Care hosted a conversation with Dr. Atul Gawande with Minnesota Public Radio's...
Roundtable with Senator Al Franken
Today I had the privilege of being invited by the Minnesota Network of Hospice and Palliative Care to be a part of a roundtable...
What Palliative Care Means to Us
I was recently asked to write about our pediatric palliative care story for a project the National Institute of Nursing Research (NINR)...