Super-Powered Mom
I just returned home from my first Hearts at Home moms conference. I went with a friend who four years earlier had gone to her first...
National Institute of Nursing Research
We are so honored to have been selected to share Levi's story as a part of the National Institute of Nursing Research (NINR) campaign...
Dr Gawande: A Breath of Fresh Air
Tonight the Minnesota Network of Hospice and Palliative Care hosted a conversation with Dr. Atul Gawande with Minnesota Public Radio's...
Roundtable with Senator Al Franken
Today I had the privilege of being invited by the Minnesota Network of Hospice and Palliative Care to be a part of a roundtable...
What Palliative Care Means to Us
I was recently asked to write about our pediatric palliative care story for a project the National Institute of Nursing Research (NINR)...
When my Son is Sick
I live in a complete state of exhaustion all the time and it has been like this for five and a half years. My sleep patterns are...
A Week of No Sleep
In our home, who gets to sleep and when, is very precarious. Levi needs 24/7 ICU level care, which means someone is always awake caring...
Sharing a Muffin
On some days, the smallest of moments radiate with the brightest of lights, and I am filled with overwhelming astonishment, grief and...
MN Capital Testimony
Out of the blue I received a phone call from a friend asking if I would be willing testify at the MN Capital? To share Levi's story and...
I Had Never Imagined
For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future....
