Nowhere to die
Today the Star Tribune, an award willing regional newspaper, featured a story on Crescent Cove and our son Levi on the cover of the...
National Institute of Nursing Research
We are so honored to have been selected to share Levi's story as a part of the National Institute of Nursing Research (NINR) campaign...
Dr Gawande: A Breath of Fresh Air
Tonight the Minnesota Network of Hospice and Palliative Care hosted a conversation with Dr. Atul Gawande with Minnesota Public Radio's...
Roundtable with Senator Al Franken
Today I had the privilege of being invited by the Minnesota Network of Hospice and Palliative Care to be a part of a roundtable...
What Palliative Care Means to Us
I was recently asked to write about our pediatric palliative care story for a project the National Institute of Nursing Research (NINR)...
When my Son is Sick
I live in a complete state of exhaustion all the time and it has been like this for five and a half years. My sleep patterns are...
A Week of No Sleep
In our home, who gets to sleep and when, is very precarious. Levi needs 24/7 ICU level care, which means someone is always awake caring...
I Had Never Imagined
For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future....
Beauty and the Beast
There is an incredible dichotomy that arises when you have a child who outlives their prognosis of a shortened life expectancy. The...
