Today I had the privilege of being invited by the Minnesota Network of Hospice and Palliative Care to be a part of a roundtable...

I was recently asked to write about our pediatric palliative care story for a project the National Institute of Nursing Research (NINR)...

I live in a complete state of exhaustion all the time and it has been like this for five and a half years. My sleep patterns are...

In our home, who gets to sleep and when, is very precarious. Levi needs 24/7 ICU level care, which means someone is always awake caring...

On some days, the smallest of moments radiate with the brightest of lights, and I am filled with overwhelming astonishment, grief and...

For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future....

The first big snowfall arrived two weeks ago and I have been trying daily to bring words to the shift I feel happeneing within me. The...

I knew the day was coming and then, it happened.... One of the ripple effects of Levi's severe brain damage has been a much slower...

There is an incredible dichotomy that arises when you have a child who outlives their prognosis of a shortened life expectancy. The...

It is a beautiful spring day; warm sun, blue sky, and birds chirping. This is the day when I say to myself, “finally we have made it...