Crescent Cove to Open: A Special Resource for Children and Families
This month I had the pleasure of being invited to co-write an article with Ted Bowman, an internationally recognized grief and family...
Palliative WHO? meet the Sherpas who help us Navigate the Diagnosis of Uncertainty.
Uncertainty is a series of steep mountains, treacherous valleys, and occasional quiet waters. Terrain that, before the birth of my son, I di
Palliative WHAT? understanding the team that keeps my son out of the hospital
"While palliative can be a word heard frequently in the medical field, it’s one that is often misunderstood and unnecessarily concerning...
A Letter to My Son's Care Team
Summer 2016 We have nearly completed our 7th summer of annual clinic visits, where we check in with Levi's long list of specialty...
The Surprises of 2015
At the end of 2014, I was invited to speak at the Minnesota Network of Hospice and Palliative Care's (MNHPC) Fundraiser. The invitation...
What Palliative Care Means to Us
I was recently asked to write about our pediatric palliative care story for a project the National Institute of Nursing Research (NINR)...
MN Capital Testimony
Out of the blue I received a phone call from a friend asking if I would be willing testify at the MN Capital? To share Levi's story and...
